Evrensel Hasta Haklar\u0131 Derne\u011fi, baz\u0131 t\u00fcp bebek merkezleri hakk\u0131ndaki iddialarla ilgili soru\u015fturman\u0131n kapsam\u0131 ve bug\u00fcne kadarki sonu\u00e7lar\u0131n\u0131n kamuoyuyla payla\u015f\u0131lmas\u0131n\u0131 talep ederek\u00a0ba\u011f\u0131ms\u0131z, s\u00fcrekli \u00e7al\u0131\u015fan bir Etik Kurul olu\u015fturulmas\u0131 gerekti\u011fini s\u00f6yledi.<\/p>\n
\u00dcremeye yard\u0131mc\u0131 tedavi uygulamalar\u0131n\u0131 hasta haklar\u0131 ve biyoetik ilkeler a\u00e7\u0131s\u0131ndan de\u011ferlendirecek, mevcut idari yap\u0131lardan ve sekt\u00f6rel \u00e7\u0131karlardan ba\u011f\u0131ms\u0131z, s\u00fcrekli \u00e7al\u0131\u015fan bir Etik Kurul olu\u015fturulmas\u0131 gerekti\u011fini belirten \u0130mge, etkilenmi\u015f olabilece\u011fini d\u00fc\u015f\u00fcnen ki\u015filer i\u00e7in gizli, g\u00fcvenli ve eri\u015filebilir bir ba\u015fvuru mekanizmas\u0131 kurulmas\u0131 gerekti\u011fini de ifade etti.<\/p>\n
Dernek Asba\u015fkan\u0131 Emete \u0130mge yapt\u0131\u011f\u0131 yaz\u0131l\u0131 a\u00e7\u0131klamada, BBC taraf\u0131ndan yay\u0131mlanan ara\u015ft\u0131rmaya g\u00f6re, baz\u0131 t\u00fcp bebek merkezlerinde tedavi g\u00f6ren ailelerin se\u00e7tiklerini d\u00fc\u015f\u00fcnd\u00fckleri sperm veya yumurta don\u00f6rleri yerine farkl\u0131 don\u00f6rlerin kullan\u0131lm\u0131\u015f olabilece\u011finin iddia edildi\u011fini hat\u0131rlatt\u0131.<\/p>\n
\u201cSon haberde, \u00e7o\u011funlu\u011fu \u0130ngiliz en az 30 \u00e7ocukla ilgili \u015f\u00fcphe bulundu\u011fu ve baz\u0131 \u00e7ocuklara yap\u0131lan DNA testlerinin ailelerin kayg\u0131lar\u0131n\u0131 g\u00fc\u00e7lendirdi\u011fi belirtilmektedir.\u201d diyen \u0130mge, iddialar\u0131n hen\u00fcz yarg\u0131 karar\u0131yla kesinle\u015fmedi\u011fini ancak konunun birka\u00e7 a\u00e7\u0131klamayla ge\u00e7i\u015ftirilemeyecek kadar ciddi oldu\u011funu kaydetti.<\/p>\n
Don\u00f6r\u00fcn anonim olmas\u0131yla, hastan\u0131n bilgisi ve onay\u0131 d\u0131\u015f\u0131nda farkl\u0131 bir don\u00f6r kullan\u0131lmas\u0131n\u0131n ayn\u0131 \u015fey olmad\u0131\u011f\u0131n\u0131 ifade eden \u0130mge, \u201cBuradaki tart\u0131\u015fma don\u00f6r\u00fcn ad\u0131n\u0131n bilinip bilinmemesi de\u011fil, hastaya s\u00f6ylenen ve hastan\u0131n onaylad\u0131\u011f\u0131 ko\u015fullara uyulup, uyulmad\u0131\u011f\u0131d\u0131r.\u201d dedi.<\/p>\n
\u201cHastan\u0131n bilgisi ve r\u0131zas\u0131 d\u0131\u015f\u0131nda yap\u0131lan bir don\u00f6r de\u011fi\u015fikli\u011fini, \u00f6nceden imzalanm\u0131\u015f genel bir form me\u015fru h\u00e2le getirmez. \u00c7\u00fcnk\u00fc bilgilendirilmi\u015f onam yaln\u0131zca bir imza de\u011fil, hastan\u0131n neye onay verdi\u011fini bilerek ve \u00f6zg\u00fcrce karar verdi\u011fi devaml\u0131 bir s\u00fcre\u00e7tir.\u201d diyen \u0130mge, her hastan\u0131n, kendisine uygulanacak i\u015flemi do\u011fru ve eksiksiz bi\u00e7imde bilme, \u00f6zg\u00fcrce karar verme, t\u0131bbi kay\u0131tlar\u0131na ula\u015fma, g\u00fcvenli ve nitelikli sa\u011fl\u0131k hizmeti alma ve yanl\u0131\u015f uygulamalar kar\u015f\u0131s\u0131nda hesap sorabilme hakk\u0131na sahip oldu\u011funu belirtti.<\/p>\n
-\u201cS\u00fcrekli \u00e7al\u0131\u015fan bir Etik Kurul olu\u015fturulmal\u0131\u201d<\/p>\n
Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131\u2019na, mart ay\u0131nda ba\u015flat\u0131ld\u0131\u011f\u0131 a\u00e7\u0131klanan soru\u015fturman\u0131n hangi a\u015famada oldu\u011funu soran \u0130mge, b\u00fct\u00fcn kay\u0131tlar\u0131n genetik, embriyoloji, hasta haklar\u0131 ve biyoetik alanlar\u0131ndan ba\u011f\u0131ms\u0131z uzmanlar taraf\u0131ndan incelenmesi gerekti\u011fini kaydetti.<\/p>\n
\u201cDNA testleri otomatik veya zorunlu h\u00e2le getirilmemelidir.\u201d diyen \u0130mge, test talep eden ailelere ve \u00e7ocuklara, mahremiyetleri ve bilmek istememe haklar\u0131 da g\u00f6zetilerek, ba\u011f\u0131ms\u0131z genetik dan\u0131\u015fmanl\u0131k, psikolojik ve hukuki deste\u011fin \u00fccretsiz sunulmas\u0131 gerekti\u011fini belirtti. Emete \u0130mge, bu meselenin takip\u00e7isi olacaklar\u0131n\u0131 kaydetti.<\/p>\n
\u00a0<\/p><\/p>\n","protected":false},"excerpt":{"rendered":"
Evrensel Hasta Haklar\u0131 Derne\u011fi, baz\u0131 t\u00fcp bebek merkezleri hakk\u0131ndaki iddialarla ilgili soru\u015fturman\u0131n kapsam\u0131 ve bug\u00fcne kadarki sonu\u00e7lar\u0131n\u0131n kamuoyuyla payla\u015f\u0131lmas\u0131n\u0131 talep ederek\u00a0ba\u011f\u0131ms\u0131z, s\u00fcrekli \u00e7al\u0131\u015fan bir Etik Kurul olu\u015fturulmas\u0131 gerekti\u011fini s\u00f6yledi. \u00dcremeye yard\u0131mc\u0131 tedavi uygulamalar\u0131n\u0131 hasta haklar\u0131 ve biyoetik ilkeler a\u00e7\u0131s\u0131ndan de\u011ferlendirecek, mevcut idari yap\u0131lardan ve sekt\u00f6rel \u00e7\u0131karlardan ba\u011f\u0131ms\u0131z, s\u00fcrekli \u00e7al\u0131\u015fan bir Etik Kurul olu\u015fturulmas\u0131 gerekti\u011fini belirten …<\/p>\n","protected":false},"author":1,"featured_media":148665,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[31,3942,1288,7007,10601,15028,15406,526,12643],"class_list":["post-148664","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-kibris","tag-dernegi","tag-evrensel","tag-haklari","tag-hasta","tag-kamuoyuyla","tag-kapsami","tag-paylasilmali","tag-sonuclari","tag-sorusturmanin"],"_links":{"self":[{"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/posts\/148664"}],"collection":[{"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/comments?post=148664"}],"version-history":[{"count":0,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/posts\/148664\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/media\/148665"}],"wp:attachment":[{"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/media?parent=148664"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/categories?post=148664"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.kibrishost.com\/tak\/wp-json\/wp\/v2\/tags?post=148664"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}